Toilet Training and Spina Bifida

Toilet Training, Bowel Programs and UTI’s are one of the most common topics at any Spina Bifida gathering.  Sit in the back of a Spina Bifida Teen Conference, next to the wheelchairs, and one will quickly figure out why.  The nerves that control the bowel and bladder exit the spinal cord at S2-S4.  Therefore, paralysis

Teaching Puzzles – The Skills Needed to Move from Inset to Interlocking

“Marcus dislikes puzzles because they do not interested him!” This is what I recently heard from Marcus’s father. We were involved in puzzle centers and dad was sure Marcus could complete the presented, twenty-four piece puzzles; if he wanted to. They have puzzles at home and Marcus can put those together. Marcus has several puzzle apps

Rethinking Denial

How a medical professional approaches a special needs parent makes or breaks the relationship. I think this article should be read by all medical professionals.  What the medical professional thinks about a family can impact the plan of care that is developed. Phrases like: Parent’s just spoil him/her, It is just behavior, and That parent is

The stages of special needs parenting.

I find it interesting that people associate the stages of special needs parenting with the same steps of those who are grieving a loss. Yes, I can see how there is a similarity.  But, I also see big differences. In death there is finality.  When parenting a special needs child, there is movement, change and then