I am Nameless as I’d done pretending.  Pretending to those that have more and pretending to those who have less.  Special needs kids can do that to a mom.  Where are you realReal with your friends who do not really know the special needs world; and/or real with those who have lived in your shoes, somewhat.

In both places there are questions, in both places there are things not really discussed.  Both places are different and yet the same.

Through it all you have hope.  You must have hope and strive for things yet attained.  Can it be done?  What are the knowns? Hope is what keeps us moving forward.

Sometimes those that are not known can really speak.

Hope  ~Author unknown~

If you can look at the sunset and smile, then you still have hope.
If you can find beauty in the colors of a small flower, then you still have hope. If you can find pleasure in the movement of a butterfly, then you still have hope.
If the smile of a child can still warm your heart, then you still have hope.
If you can see the good in other people, then you still have hope.
If the rain breaking on a roof top can still lull you to sleep, then you still have hope.
If the sight of a rainbow still makes you stop and stare in wonder, then you still have hope.
If the soft fur of a favored pet still feels pleasant under your fingertips, then you still have hope.
If you meet new people with a trace of excitement and optimism, then you still have hope.
If you give people the benefit of a doubt, then you still have hope.
If you still offer your hand in friendship to others that have touched your life, then you still have hope.
If receiving an unexpected card or letter still brings a pleasant surprise, then you still have hope.
If the suffering of others still fills you with pain and frustration, then you still have hope.
If you refuse to let a friendship die, or accept that it must end, then you still have hope.
If you look forward to a time or place of quiet and reflection, then you still have hope.
If you still buy the ornaments, put up the Christmas tree or cook the supper, then you still have hope.
If you can look to the past and smile, then you still have hope.
If, when faced with the bad, when told everything is futile, you can still look up and end the conversation with the phrase…”yeah…BUT.,” then you still have hope.
Hope is such a marvelous thing. It bends, it twists, it sometimes hides, but rarely does it break. It sustains us when nothing else can. It gives us reason to continue and courage to move ahead, when we tell ourselves we’d rather give in.
Hope puts a smile on our face when the heart cannot manage.
Hope puts our feet on the path when our eyes cannot see it.
Hope moves us to act when our souls are confused of the direction.
Hope is a wonderful thing, something to be cherished and nurtured, and something that will refresh us in return.
And it can be found in each of us, and it can bring light into the darkest of places.
Never lose hope !

As a parent of a special needs child, we do strive to never give up hope. Not necessarily hope of a cure. What is not connected can never truly be strengthened. I strive for normalcy.  I preserve to assure I have done all I can.   “Perseverance is not a long race. It is many short races one after another.” – W. Elliot

I dislike when it is said; God will not give us more than we can handle.  Really, so God gave you your child because?  And my child because I could handle it!  How does that really make it better?

Do not get me wrong, I love my child.  She is funny, unique and a true blessing.  She has taught me to slow down, to smell the roses, to appreciate the small steps.

Some say, special needs kids can be brats and believe me I have seen some true brats.  Spoiled beyond the known; just because they are special.  But then who am I to judge, I did not walk in that parent’s shoes.  Was it being special that made them who they are or is it how that child’s brain is wired? Is it the only way that parent could attain their normal.  Spoiled, those in both worlds need not judge.

What I do know is if you look deep enough, than you find all kids are special and yet special kids can leave a different mark.  “Some people come into our lives, leave footprints on our hearts, and we are never the same.” -Franz Peter Schubert

Strength that is what is truly needed. For with strength comes the ability to do.  The ability to deal.  The ability to move forward and believe that your child will be ok,  will have a friend, will live a happy life. “Anyone can give up, it’s the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that’s true strength.” – Christopher Reeves

20 thoughts on “The Hope of the Nameless; Am I doing it right?

  1. Thank you for liking my post. I used to think that something was wrong with me because I didn’t like going out much, but I know now that nothing is wrong with me I just prefer being at home. There are some days where I do want to go out, but because I don’t have friends nearby I end up staying home, but I am working on doing things by myself, I don’t need to have a circle of friends around me to explore the world. 🙂

  2. Thank you for noticing Shadows and complimenting with a “like”.

    I am one of those special needs kids…or was born one. To be honest, and not to pretend, it is not my disability that confines me as a cripple, but certain people types. For me there is blessed hope and blessed freedom…in and through the pain, the trials and rejection. There is purpose in life.

    I will have to check out your blog and gain insight on what it is like to love, to care and to live with a special needs child.

  3. Thank you for stopping by to read about my preemie (born at 23 weeks 3 days weighing 1lb 8oz) and his physical therapy! I’m following your blog because I have a feeling many of these tips will apply as Jax grows and learns. Thanks!

  4. Thank you so much for liking several of my posts on Tide Line Still Life. I have thoroughly enjoyed perusing through your blog, and appreciate its level of depth and provocation. What a remarkable person you are! Best, Mggie

  5. Pingback: 200 word press followers – A Blog Recap | Transitions and A Medically Complex Child

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