Give me REAL DATA not miracle stories

I get so tired of people selling stuff by providing information about how the product helped one other person.  Or, by providing only part of the story. I have been a special needs parent for over 18 years, give me solid data; not some miracle about one person.  There are over a billion people in this

Unscheduled time has its benefits

In a world of medical appointments, therapy visits, home programs and educational tutoring, sometimes, special, needs parents need reminders to play. To get down on the floor and have fun for the sake of having fun. To drift off in that special world in which imagination takes over and family fun takes precedent over all

Spina Bifida – Walking by Age and Injury Level.

Last week I had the pleasure of attending a working about spina bifida and gait. The following is a table from that presentation which indicates the age at which a child with spina bifida started and stopped walking based on the research project being reviewed.   Thoracic High Lumbar L1-L2 Mid Lumbar L3 Low Lumbar L4-L5 Sacral

Can my child get a job and keep or still get disability benefits?

Can a person, with a disability, work and still receive benefits? This is the question I have asked for a few month now. It seems it is possible. Yet, it seems only possible, if you understand all the complicated criteria and restrictions.  I recently contacted a local social worker for assistance and she sent me the following information.   Thanks

Predicting the future of special needs kids

At 17, Mel has been one of the lucky ones.  No shunt difficulties-yet. During her most recent developmental assessment, the nurse indicated that; as Mel has had no signs of shunt malfunction, the next period of concern, for shunt malfunction, would be at age 22 years.  In other words, if Mel follows the current data, her

College and Disabilities – Resources to Share.

It is hard to believe that Mel will be eighteen in less than six months. Time sure has moved quickly.  As she is turning eighteen, she is participating in her last clinics at Texas Scottish Rite Hosptial.  The services at T.S.R.H. end at age eighteen.  I have been so blessed to live in an area with such