Why Everything Does Not Happen For A Reason

Originally posted on john pavlovitz:
That phrase. We’ve all received it personally gift-wrapped by well-meaning friends, caring loved ones, and kind strangers. It usually comes delivered with the most beautiful of intentions; a buffer of hope raised in the face of the unimaginably painful things we sometimes experience in this life. It’s a close, desperate lifeline thrown out to…

Toilet Training and Spina Bifida

Toilet Training, Bowel Programs and UTI’s are one of the most common topics at any Spina Bifida gathering.  Sit in the back of a Spina Bifida Teen Conference, next to the wheelchairs, and one will quickly figure out why.  The nerves that control the bowel and bladder exit the spinal cord at S2-S4.  Therefore, paralysis

Teaching Puzzles – The Skills Needed to Move from Inset to Interlocking

“Marcus dislikes puzzles because they do not interested him!” This is what I recently heard from Marcus’s father. We were involved in puzzle centers and dad was sure Marcus could complete the presented, twenty-four piece puzzles; if he wanted to. They have puzzles at home and Marcus can put those together. Marcus has several puzzle apps

Rethinking Denial

How a medical professional approaches a special needs parent makes or breaks the relationship. I think this article should be read by all medical professionals.  What the medical professional thinks about a family can impact the plan of care that is developed. Phrases like: Parent’s just spoil him/her, It is just behavior, and That parent is

The stages of special needs parenting.

I find it interesting that people associate the stages of special needs parenting with the same steps of those who are grieving a loss. Yes, I can see how there is a similarity.  But, I also see big differences. In death there is finality.  When parenting a special needs child, there is movement, change and then