Decrease the behavior & increase the learning by supporting the true needs of the child

Medically complicated kids are sometimes like puzzles. Each puzzle piece is important in understanding the child’s strengths and weaknesses.  When parents lack information. When they are looking for a quick fix or do not fully support the medical team, pieces of the puzzle are missed and the child’s development and skill attainment lags. The best

Sitting Alone in a Special Need’s World.

Jonathan’s mom and I had coffee this morning.  She was talking about how lonely it sometimes feels to parent a special need’s child. You see Jonathan is in high school.  His freshman year.  He is in the gifted program and he loves football. It was the the first game of the season.   Jonathan was so

Kids need to Move. Kids need to Play. Kids need to Go Outside.

It is time for school to start and once again, kids are going to be struggling to focus.  The American Academy of Pediatrics recommends 60 minutes of physical activity per day.  Sixty minutes, at least 5 days a week, for 6 out of 8 weeks. As an alternative, you can count your daily activity steps using

Why Everything Does Not Happen For A Reason

Originally posted on john pavlovitz:
That phrase. We’ve all received it personally gift-wrapped by well-meaning friends, caring loved ones, and kind strangers. It usually comes delivered with the most beautiful of intentions; a buffer of hope raised in the face of the unimaginably painful things we sometimes experience in this life. It’s a close, desperate lifeline thrown out to…

Toilet Training and Spina Bifida

Toilet Training, Bowel Programs and UTI’s are one of the most common topics at any Spina Bifida gathering.  Sit in the back of a Spina Bifida Teen Conference, next to the wheelchairs, and one will quickly figure out why.  The nerves that control the bowel and bladder exit the spinal cord at S2-S4.  Therefore, paralysis

The stages of special needs parenting.

I find it interesting that people associate the stages of special needs parenting with the same steps of those who are grieving a loss. Yes, I can see how there is a similarity.  But, I also see big differences. In death there is finality.  When parenting a special needs child, there is movement, change and then

“The best year of my life will be the year I die” …

This is inspiring! A speech made by a valedictorian at Harrison High School has spread through social media for its inspirational message.Evan Mercer was born deaf. It was not discovered until he was 4 years old. His parents were told that speaking and reading were out of the question. On May 22, at age 18,

Parenting Behaviors that Cripple Kids

This is a great article.  Here is the link and article highlights http://www.forbes.com/sites/kathycaprino/2014/01/16/7-crippling-parenting-behaviors-that-keep-children-from-growing-into-leaders/ 1. We don’t let our children experience risk We live in a world that warns us of danger at every turn. The “safety first” preoccupation enforces our fear of losing our kids, so we do  everything we can to protect them. It’s

Toxic encounters, draining converstations and the HOLIDAYS

As parents of special needs kids, we have the opportunity to interact with many individuals. People, put in our path, because of the special needs of our child. Doctors, therapists, and of course the general population with all their stares, questions and random questions.  All these interactions can impact our emotional stability. How are we supposed to