Rethinking Denial

How a medical professional approaches a special needs parent makes or breaks the relationship. I think this article should be read by all medical professionals.  What the medical professional thinks about a family can impact the plan of care that is developed. Phrases like: Parent’s just spoil him/her, It is just behavior, and That parent is

Give me REAL DATA not miracle stories

I get so tired of people selling stuff by providing information about how the product helped one other person.  Or, by providing only part of the story. I have been a special needs parent for over 18 years, give me solid data; not some miracle about one person.  There are over a billion people in this

Unscheduled time has its benefits

In a world of medical appointments, therapy visits, home programs and educational tutoring, sometimes, special, needs parents need reminders to play. To get down on the floor and have fun for the sake of having fun. To drift off in that special world in which imagination takes over and family fun takes precedent over all

Spina Bifida – Walking by Age and Injury Level.

Last week I had the pleasure of attending a working about spina bifida and gait. The following is a table from that presentation which indicates the age at which a child with spina bifida started and stopped walking based on the research project being reviewed.   Thoracic High Lumbar L1-L2 Mid Lumbar L3 Low Lumbar L4-L5 Sacral

How to choose a wheelchair

A greats fitting wheelchair is essential. You know your kid, you know your body. Active participation and yes sometimes insurance appeals are needed to assure you get what you need.

I still remember getting Mel’s first chair.  Read about it here:


Predicting the future of special needs kids

At 17, Mel has been one of the lucky ones.  No shunt difficulties-yet. During her most recent developmental assessment, the nurse indicated that; as Mel has had no signs of shunt malfunction, the next period of concern, for shunt malfunction, would be at age 22 years.  In other words, if Mel follows the current data, her

Pressure Sores: Education is key to prevention

A pressure sore might also be called a pressure ulcers or bed sores. They occur when the skin and underlying tissue becomes damaged from too much pressure  or an injury that does not heal correctly. Individuals who uses wheelchair are at risk for pressure sores due to decreased blood flow, poor or no sensation and poor or misalignment

What Are Episodes of Care?

What are episodes of care? How will that change my child’s therapy or medical care? Is this a good thing? Does anyone have real life experience that can help inform the rest of us? For starters, I do not know. This is a term I have heard about for several years, but know little about. Episodes of

A Wheelchair Should Fit The Child

One of the saddest things to me is seeing a child, in a chair, that does not fit them.  Chairs are like a child’s shoes.  The correct fit can mean all the difference in usability, comfort and self-confidence.  A child’s life style, activity level and motor control should drive the selection.  I plan on it taking

High School to College – Transitional Links

As Mel is moving from high school to college in a less than 2 years, I am constantly on the lookout for information to help make this transition successful.  All her life, I have sought to be a few years ahead of the game.  When she was enrolling in daycare, I was focused on kindergarten.  When