Rethinking Denial

How a medical professional approaches a special needs parent makes or breaks the relationship. I think this article should be read by all medical professionals.  What the medical professional thinks about a family can impact the plan of care that is developed. Phrases like: Parent’s just spoil him/her, It is just behavior, and That parent is

Give me REAL DATA not miracle stories

I get so tired of people selling stuff by providing information about how the product helped one other person.  Or, by providing only part of the story. I have been a special needs parent for over 18 years, give me solid data; not some miracle about one person.  There are over a billion people in this

Unscheduled time has its benefits

In a world of medical appointments, therapy visits, home programs and educational tutoring, sometimes, special, needs parents need reminders to play. To get down on the floor and have fun for the sake of having fun. To drift off in that special world in which imagination takes over and family fun takes precedent over all

Spina Bifida – Walking by Age and Injury Level.

Last week I had the pleasure of attending a working about spina bifida and gait. The following is a table from that presentation which indicates the age at which a child with spina bifida started and stopped walking based on the research project being reviewed.   Thoracic High Lumbar L1-L2 Mid Lumbar L3 Low Lumbar L4-L5 Sacral

How to choose a wheelchair

A greats fitting wheelchair is essential. You know your kid, you know your body. Active participation and yes sometimes insurance appeals are needed to assure you get what you need.

I still remember getting Mel’s first chair.  Read about it here: https://transitionalmoment.wordpress.com/2012/11/30/mels-first-wheelchair/

 

Predicting the future of special needs kids

At 17, Mel has been one of the lucky ones.  No shunt difficulties-yet. During her most recent developmental assessment, the nurse indicated that; as Mel has had no signs of shunt malfunction, the next period of concern, for shunt malfunction, would be at age 22 years.  In other words, if Mel follows the current data, her