Rethinking Denial

How a medical professional approaches a special needs parent makes or breaks the relationship. I think this article should be read by all medical professionals.  What the medical professional thinks about a family can impact the plan of care that is developed. Phrases like: Parent’s just spoil him/her, It is just behavior, and That parent is

Give me REAL DATA not miracle stories

I get so tired of people selling stuff by providing information about how the product helped one other person.  Or, by providing only part of the story. I have been a special needs parent for over 18 years, give me solid data; not some miracle about one person.  There are over a billion people in this

Unscheduled time has its benefits

In a world of medical appointments, therapy visits, home programs and educational tutoring, sometimes, special, needs parents need reminders to play. To get down on the floor and have fun for the sake of having fun. To drift off in that special world in which imagination takes over and family fun takes precedent over all

Predicting the future of special needs kids

At 17, Mel has been one of the lucky ones.  No shunt difficulties-yet. During her most recent developmental assessment, the nurse indicated that; as Mel has had no signs of shunt malfunction, the next period of concern, for shunt malfunction, would be at age 22 years.  In other words, if Mel follows the current data, her

Does my child have a feeding problem?

It is easy for parents to become worried, confused and agitated with their child’s eating habits.  Meal times are supposed to be relaxed, social bonding episodes in a busy day.  Toddler can be lovable one moment and then stubborn as rocks the next.  Some toddlers do not handle change well and in may ways cannot handle change.  Today’s life style is busy, so

Maximizing Communication! I-Pad?

Are you giving your child every chance to communicate? Communication is key and I’m not talking just about verbal skills. Touching, pointing, and giving are important outlets for communication.  We must set our kids up for success using alternative ways to communicate as early as possible. How early can we start to offer extra ways for

What Are Episodes of Care?

What are episodes of care? How will that change my child’s therapy or medical care? Is this a good thing? Does anyone have real life experience that can help inform the rest of us? For starters, I do not know. This is a term I have heard about for several years, but know little about. Episodes of