Sitting Alone in a Special Need’s World.

Jonathan’s mom and I had coffee this morning.  She was talking about how lonely it sometimes feels to parent a special need’s child. You see Jonathan is in high school.  His freshman year.  He is in the gifted program and he loves football. It was the the first game of the season.   Jonathan was so

Why Everything Does Not Happen For A Reason

Originally posted on john pavlovitz:
That phrase. We’ve all received it personally gift-wrapped by well-meaning friends, caring loved ones, and kind strangers. It usually comes delivered with the most beautiful of intentions; a buffer of hope raised in the face of the unimaginably painful things we sometimes experience in this life. It’s a close, desperate lifeline thrown out to…

Toilet Training and Spina Bifida

Toilet Training, Bowel Programs and UTI’s are one of the most common topics at any Spina Bifida gathering.  Sit in the back of a Spina Bifida Teen Conference, next to the wheelchairs, and one will quickly figure out why.  The nerves that control the bowel and bladder exit the spinal cord at S2-S4.  Therefore, paralysis

Rethinking Denial

How a medical professional approaches a special needs parent makes or breaks the relationship. I think this article should be read by all medical professionals.  What the medical professional thinks about a family can impact the plan of care that is developed. Phrases like: Parent’s just spoil him/her, It is just behavior, and That parent is