Jonathan’s mom and I had coffee this morning. She was talking about how lonely it sometimes feels to parent a special need’s child. You see Jonathan is in high school. His freshman year. He is in the gifted program and he loves football. It was the the first game of the season. Jonathan was so
Last week I had the pleasure of attending a working about spina bifida and gait. The following is a table from that presentation which indicates the age at which a child with spina bifida started and stopped walking based on the research project being reviewed. Thoracic High Lumbar L1-L2 Mid Lumbar L3 Low Lumbar L4-L5 Sacral
A greats fitting wheelchair is essential. You know your kid, you know your body. Active participation and yes sometimes insurance appeals are needed to assure you get what you need.
I still remember getting Mel’s first chair. Read about it here: https://transitionalmoment.wordpress.com/2012/11/30/mels-first-wheelchair/
“Mom I have a sore again!” The most dreaded words ever! Why? Why? Why? Was my first thought. Deep despair, digs into my heart. Really. “AGAIN!” I shout in my brain. I want to cry but I know I have to stop. Time to reorganize my brain and present the solid self, the one who