Last week I had the pleasure of attending a working about spina bifida and gait. The following is a table from that presentation which indicates the age at which a child with spina bifida started and stopped walking based on the research project being reviewed. Thoracic High Lumbar L1-L2 Mid Lumbar L3 Low Lumbar L4-L5 Sacral
A greats fitting wheelchair is essential. You know your kid, you know your body. Active participation and yes sometimes insurance appeals are needed to assure you get what you need.
I still remember getting Mel’s first chair. Read about it here: https://transitionalmoment.wordpress.com/2012/11/30/mels-first-wheelchair/
“Mom I have a sore again!” The most dreaded words ever! Why? Why? Why? Was my first thought. Deep despair, digs into my heart. Really. “AGAIN!” I shout in my brain. I want to cry but I know I have to stop. Time to reorganize my brain and present the solid self, the one who